Thursday, January 21, 2016

Sweet Dreams Becoming a Reality!

Great News!!! WHOO! 

Oops. Shhh, I'd better be quiet -- Hazel's asleep. It's past 3:00 pm as I write, and she's asleep in the afternoon because she couldn't sleep all night. Even when she's awake I have to be quiet: no TV or stereo or even loud conversation in this home. 

But right now I'm having a hard time maintaining silence. I want to jump up and down and holler, 
HOORAY!

I ordered Hazel's bed today. 

And I want to shout out a huge,
THANK YOU!
to all of you who made this milestone possible.

Hazel will sleep like a -- wait, no, babies aren't such good sleepers, and logs aren't alive. Like a bee? Looks like they sleep a little crowded up, but they're happy. So let's say she'll sleep like a bee.
Bees Sleeping on a Seed Head by linsepatron via wikimedia commons: https://commons.wikimedia.org/wiki/File:Bees_sleeping_on_a_seed_head.jpg

Better sleep, and more comfort while awake-but-bedridden, will mean so much to Hazel's health. 

The bed will take four weeks to build and deliver, but thanks are due Right Now to all who contributed, and with a special thanks to my friend Kirsten who provided a copy of her RN license to get the medical discount, to Heidi whose online Jamberry party topped off the donations needed to get the bed, and to Heather who took me to the store and helped me think of all the right questions to ask the dealer. I feel confident that this is going to be a big comfort, quite literally.

(I'll post again in future to let you all know how the bed works out for her.)

The paperwork is now being processed. The dealer said he wasn't supposed to offer a Medical Discount on the least expensive model but the Sleep Number Powers that Be said that now that he did, they will honor that deal, but they have to take a couple of extra days to approve the sale and then they'll accept payment. I don't know. Some mysterious Sleep Number hierarchical concave has convened in their conical caps and will give the bed the nod.

So! Anyhow? Wow. We all worked so hard together to make this happen. Since I can't shout out loud, I might just have a quiet cry of happiness. *snuffle* you're all so good *sniffle*

I look forward to future posts of triumph, to announce progress toward a Service Dog, a power wheelchair and the van with a wheelchair lift to haul it, and oxygen compression equipment. We are making real progress to make Hazel's life bearable.

And I look forward to posting a picture of the New Bed. What a big moment that will be! But for now, I'll post a pic of Hazel Happy. Here's a thumbs up to thank you for helping!

Sunday, January 17, 2016

What's the Difference Between Hazel and Kim Kardashian?

There's very good news coming very soon and I'm just itching to post it, but I have to wait a tiny while longer. So meanwhile I offer this amusing little comparison.

This only hurts a little.

Hazel and Kim both might wear sunglasses, but Hazel wears them indoors to protect her sensitive eyes from the slightest light, while Kim wears them for some kind of pseudo-celebrity reason.

And Hazel and Kim both get out, but Hazel gets out maybe once a month for a visit to a doctor or dentist, while Kim gets out everywhere, all over the covers of the tabloids.

Finally, when Hazel stretches out a slender arm, she's getting blood drawn. Kim is seen in a similar situation but that's not a phlebotomy clinic. That's a salon, and she's getting her nails done.

A little good news I can share for now: Fundraisers are happening to help Hazel heal, and hey, you can help Hazel by getting your nails done, at home, for a lot less money, and a lot more kindly toward the environment, than what Kim's salon does.

Shop for Jamberry Nail Care products at Pajamaberry and all profits will help Heal Hazel. Plus we have these special Exclusive Pajamaberry Nail Wrap Designs available to Heal Hazel supporters, only.


$2 from each sale of ME Butterly Release is donated to ME research. All other profits go to Heal Hazel.

$2 from each sale of ME Triangles is donated to ME research. All other profits go to Heal Hazel.


$2 from each sale of Slice of Lime is donated to Lyme Disease research. All other profits go to Heal Hazel. 


To get these wraps, buy a $25 Gift Card and then email pajamajamberry@gmail.com with your gift card's Code Number and tell me which style you would like, and your address to send it to. Easy Peasy and you'll get a whole lot of gratitude along with your stylish, nontoxic, biodegradable, long-lasting and affordable wraps. Each sheet of wraps does two manicures, two pedicures, and eight accent nails! For $25! I bet Kim Kardashian is paying a whole lot more for her stinky toxic polish.

To host an online Jamberry party to win products or to benefit Hazel or to raise funds for your own special cause, click "HOST A PARTY" at this link.

If you want custom designed nail wraps for your own cause, business or whatever, please email pajamajamberry@gmail.com and we'll start the design work right away!

Note to Kim K: even you can switch over to Jamberry and be doin those glammy nails up for a good cause. Shop now!

Or Donate! 

Tuesday, January 12, 2016

Busy Bees Helping Hazel

It's time for a progress report! I've been buzzing about like a busy bee, working so many angles on so many fronts. Bees, dog, bed, van, power chair, oxygen...you've helped save our girl's life, and we're going to get our girl a life worth living.

First and foremost, heartfelt thanks to all who have helped over the last couple of months, including Nicky, George, the Elves, Heather, Karen, Ginny, Barbara, Sally, Neil, Robert, Glenys, and the customers of my Pajama Jamberry fundraising effort. I've conveyed your good wishes to Hazel, and just hearing of your support is so amazing and gratifying to her. It's truly moving, when she's been made to feel like human garbage, for her to find there are people out there who care about her.

You can make your nails pretty and be helping Hazel, you can even help just by "liking" my Pajamaberry Facebook Page, and you can help Hazel while helping ME Research or helping save bees. Yes, bees! Curious? Read on...

Hazel has horrible nightmares due to PTSD. When she has a happy dream, though, she dreams of bees! And it has long been her daydream to keep bees. So, for a little over a year, I've been attending meetings of the Sonoma County Beekeepers' Association whenever I could, and I've learned a lot about bees, but maybe the most motivating thing I've learned, is what a great organization it is.

Speakers from all over the country address the monthly meetings and applaud the SCBA as a model of bee activism, while between those meetings there are smaller "cluster" meetings, booths and displays at community events, visits to schools and other groups: a constant education effort not only about beekeeping, but about bees themselves, and how we can help them (and the planet) survive.

Bee Dazzling nontoxic biodegradable nail wrap raises funds to help bees and Hazel.


So it's my pleasure to assist their efforts, while helping Hazel too, by offering this exclusive "Bee Dazzling" nail wrap. For each sheet sold, I donate $2 to the Sonoma County Beekeepers Association. There are other beekeeping groups of course, in other places, but none does more in the way of education, outreach, and cooperation. I'm proud to support them as a member, a volunteer and a fundraiser.

I've also got special wraps to raise awareness and funding for Myalgic Encephalomyelitis research. Check them out at the Pajamaberry Facebook page!

Bees are nice to have around, and their presence will probably prove therapeutic to Hazel, but there's another animal on her horizon: her service dog. In talking with a trainer, I learned so many more ways her dog will be able to help our girl. Not only will the dog be trained to wake her from nightmares and fend off panic attacks, but it can pull her, carry for her, call 911 for her, steady her when she's dizzy and help her up off a bed, chair, or floor.

What breed or mutt will win the opportunity to help Hazel? We're so eager to find out!

Once we are able to make an initial payment to the trainer, she'll get to work identifying the right dog for Hazel - something large enough to lean on, something calm and steady and very devoted, and of course something smart. Then the trainer will put the dog through a rigorous two weeks' testing before it's cleared to start learning its job. I'm so excited to be embarking on this! Obtaining and training a dog will take time, energy, and of course money, but is going to make such a difference in the life of a seriously threatened young woman. And Hazel is excited, too! For her, wild excitement shows up as a soft little smile, is all, but I can tell you that soft smile shines when we talk about the dog. This dog will be doing so much to help Hazel at home, and, eventually, out and about.

Another big project continues to be the bed project. We have tried three different freebie beds and still, Hazel wakes in tears of pain, when she has been able to sleep at all. It's time we got this patient a comfortable bed! So, having looked into various adjustable beds, we've decided she'll try the Sleep Number basic model. I'm working the angles to get her every discount on the most affordable deal they can strike, and we are within striking distance. So dream a little dream with me: Hazel waking refreshed, rested, and in just that nice little bit less pain. And yeah, me not getting woken up at all hours to attend to her in her miserable insomnia. If you're going to have a life, you have got to get some sleep.
Dream a dream of comfort...visualize a night of sleep. 

Mobility plans are going to be a bit more of a stretch, to bring into reality. Hazel's doctor is writing a recommendation for a power wheel chair, as well as officially recommending the dog, and oxygen therapy. Maybe you can see what's coming next? Yes, we will definitely need a way to transport a power wheel chair, as well as a dog, and oxygen tanks!

At 22, when other people are at university or launching their careers, not to mention going to concerts, traveling, playing at the beach with friends, dancing and falling in love, and generally reveling in the early years of their adult lives, Hazel is stuck living in three rooms, constantly attended by her mom. When she does get out, it's only as far as the doctor's office. And when she goes to the doctor's office it's torture, because our car's shocks are shot, so it rides rough, it's noisy, it leaks and the carpets have got moldy, and the heat and cooling don't work. Hazel is extra-sensitive to the noise and the jolts and the cold or heat, so riding anywhere in that car is torture. 

Add to that, the difficulty for me or our helper, of wedging a collapsible wheelchair into and out of the car. Something has got to give! Sadly, what gave, last week, was my helper's back. My own back nearly breaks on those trips to her clinic in San Francisco when I have to load and unload the chair and push it up and down hills and into and out of narrow elevators and halls. We just can't do this anymore. We've tried to make it a while longer with that 28-year-old, too-small, too-broken car but we need a break, and not in the spine. We need a van with a wheelchair lift, for the power chair we're going to get. 

Wheel-chair wheels, wedged halfway into the ancient sedan. 


So far, no progress on the quest for wheels, but we will continue to work all the angles, seeking a charity or disabled services organization that can help.

So, you can see, we have our projects piled up for us, but we've made some progress to report, and we're putting every bit of help we can get, to the very best use. Thank you all for your help and caring in the past year, and we share with you all the highest hopes for a better life in the new year. Now, Hazel is waiting for me to bring her some water so I'm gonna post this quick... sorry for any typos... gotta buzz!